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X-WR-CALNAME:Somatic Cell Gene Editing
X-ORIGINAL-URL:https://scge.mcw.edu
X-WR-CALDESC:Events for Somatic Cell Gene Editing
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SUMMARY:Public Meeting: FDA Rare Disease Day 2026
DESCRIPTION:FDA will host Rare Disease Day\, a virtual public meeting\, on Monday\, February 23\, 2026 in global observance of Rare Disease Week. The theme is: “Moving Forward. Looking Ahead. An Event for Patients.” The goal of this year’s Rare Disease Day is to explore ways to engage and collaborate with patients and their communities to support and accelerate the development of medical products for rare diseases. We want patients to connect with FDA and stay involved with our outreach and engagement programs to ensure the patient voice informs medical product development and regulation throughout FDA.  Panels will discuss: \n\nPatient Focused FDA Initiatives\nPatient Engagement Opportunities\nAddressing Challenges and Opportunities with AI Technology\nUtilizing Real-World Data and Real-World Evidence at FDA\n\nMore info at https://www.fda.gov/news-events/fda-meetings-conferences-and-workshops/public-meeting-fda-rare-disease-day-2026-02232026
URL:https://scge.mcw.edu/events/public-meeting-fda-rare-disease-day-2026/
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DTSTART;TZID=America/Chicago:20260227T080000
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UID:5108-1772179200-1772208000@scge.mcw.edu
SUMMARY:Rare Disease Day at NIH
DESCRIPTION:Rare Disease Day at NIH aims to raise awareness about rare diseases\, the people they affect and NIH collaborations that address scientific challenges and advance research for new treatments. \nThe event will be held at NIH Main Campus (Natcher Conference Center)\, and there will also be a virtual livestream\, with the event archived for replay afterward. The event is free and open to the public. \nMore info at: https://ncats.nih.gov/news-events/events/rdd
URL:https://scge.mcw.edu/events/rare-disease-day-at-nih-2026/
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